DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 13 May, 2024

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2024 to 30 Apr, 2024

Specific Details Engagement with TDs on Topical Debate around the Rare Disease Plan

Intended results Awareness of challenges facing people with EB

Name of person primarily responsible for lobbying on this activity Sinéad Hickey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Emails thanking member of Dail for raising awareness of EB during Dail discussion on the forthcoming Rare Disease Plan.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)