Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 23 Sep, 2024

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2024 to 31 Aug, 2024

Specific Details Creating awareness to members of The House of the Oireachtas and Minister for Health of the need for a National Clinical Care Programme for patients living with pulmonary fibrosis in Ireland, and the unmet needs of those patients and the challenges they face living with a life limiting condition, the cost of running oxygen at home and rising energy costs.

Intended results A National Clinical Care programme and support for pulmonary fibrosis patients around the need for inclusion in the national rehabilitation programme and consideration and support for the running of oxygen at home, reimbursement by the HSE for payment of oxygen and the rising costs of energy.

Name of person primarily responsible for lobbying on this activity Nicola Cassidy

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Request for update on oxygen contracts in Ireland

Letter (1)

Thank you to the Chair Sean Crowe for raising ILFA's issues at the HSE testimony before the committee

Email (1)

Thank you to Cathal Crowe for submitting a parliamentary question on behalf of ILFA

Email (1)

Correspondence to Timothy O'Byrne regarding ILFA's testimony before the committee.

Letter (1)

ILFA Support Group leader in Cork, Anne Casey wrote a letter to Micheál Martin requesting a meeting to highlight ILFA's priorities

Email (1)

Email to Susan Mitchell (secretary to Minister Donnelly) and David Cullinane requesting a meeting with Minister Donnelly re ILFA priorities

Email (1)

Wrote to Jack Chambers and Minister Stephen Donnelly re pre-budget submission

Email (1)

Duncan Smith, Peter Harper, Steven Evans, Miriam Murphy, Eamon Murphy, Siobhan Russell, David Cullinane and Jordan Cole re Manifesto submission

Email (1)

John Lahart email for support in requesting a meeting with Minister Stephen Donnelly

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Duncan Smith TD (Dáil Éireann, the Oireachtas)

Miriam Murphy Councillor (Wicklow County Council)

Jack Chambers Minister of State (Department of Tourism, Culture, Arts, Gaeltacht, Sport and Media)

Susan Mitchell Special Adviser (Department of Health)

Micheál Martin Taoiseach (Dáil Éireann, the Oireachtas)

Seán Crowe TD (Dáil Éireann, the Oireachtas)

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

Neasa Hourigan TD (Dáil Éireann, the Oireachtas)

Gino Kenny TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Lorraine Clifford-Lee Senator (Seanad)

Annie Hoey Senator (Seanad)

Seán Kyne Senator (Seanad)

Frances Black Senator (Seanad)

Martin Conway Senator (Seanad)