Vulcan Consulting Limited

Lobbying Organisation Vulcan Consulting Limited

Date published 21 Jan, 2025

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2024 to 31 Dec, 2024

Specific Details Rare Disease Policy

Intended results Awareness raising and improving access to treatments for people with rare diseases.

Name of person primarily responsible for lobbying on this activity Ann Kelly, Josh Byrne and Jack Kiely

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name BioMarin

CRO number (if applicable)

Company address BioMarin International Ltd, 5 Earlsfort Terrace, Earlsfort Centre, Dublin 2

Main business or activity Health

Company website www.biomarin.com

Contact email address

Contact phone number 01 4794300

Contact address BioMarin International Ltd, 5 Earlsfort Terrace, Earlsfort Centre, Dublin 2

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Raising awareness about rare disease policy and access in Ireland.

Phone call (2-5)

Awareness raising about rare disease policy in Ireland.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

John Lahart TD (Dáil Éireann, the Oireachtas)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Nikki Bradley Senator (Seanad)