Vulcan Consulting Limited

Lobbying Organisation Vulcan Consulting Limited

Date published 21 Jan, 2025

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2024 to 31 Dec, 2024

Specific Details Rare Disease Policy in Ireland

Intended results To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.

Name of person primarily responsible for lobbying on this activity Ian Fahey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name Alliance of Rare Disease Companies Ireland (ARDCI)

CRO number (if applicable)

Company address c/o ARDCI Secretariat, Vulcan Consulting, 19-22 Baggot Street Lower, Dublin 2

Main business or activity

Company website www.ardci.ie

Contact email address ardci@vulcanconsulting.eu

Contact phone number

Contact address

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (51-100)

Phone call (6-10)

Submission (6-10)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly Minister (Department of Health)

Susan Mitchell Special Adviser (Department of Health)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Peadar Tóibín TD (Dáil Éireann, the Oireachtas)

Colm Burke TD (Dáil Éireann, the Oireachtas)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Seán Kyne Senator (Seanad)

Martin Conway Senator (Seanad)

Seán Crowe TD (Dáil Éireann, the Oireachtas)

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

John Lahart TD (Dáil Éireann, the Oireachtas)

Gino Kenny TD (Dáil Éireann, the Oireachtas)

Alan Dillon TD (Dáil Éireann, the Oireachtas)

Lorraine Clifford-Lee Senator (Seanad)

Cathal Berry TD (Dáil Éireann, the Oireachtas)

Denis Naughten TD (Dáil Éireann, the Oireachtas)

Vincent P Martin Senator (Seanad)

Pauline O'Reilly Senator (Seanad)

John Lahart TD (Dáil Éireann, the Oireachtas)

Duncan Smith TD (Dáil Éireann, the Oireachtas)

Louise O'Reilly TD (Dáil Éireann, the Oireachtas)

Matt Shanahan TD (Dáil Éireann, the Oireachtas)

Seán Canney TD (Dáil Éireann, the Oireachtas)

Violet Anne Wynne TD (Dáil Éireann, the Oireachtas)

Erin McGreehan Senator (Seanad)

Jack Chambers Minister (Department of Finance)

Shane Smyth Adviser to Minister (Department of Finance)

Helen McEntee Minister (Department of Justice)

John Paul O'Shea TD (Dáil Éireann, the Oireachtas)

Paschal Donohoe Minister (Department of Public Expenditure, NDP Delivery and Reform)

Mary Butler Minister of State (Department of Health)

Darragh O'Brien Minister (Department of Housing, Local Government and Heritage)

Norma Foley Minister (Department of Education)

James Lawless Minister of State (Department of Transport)

Clodagh Higgins Councillor (Galway City Council)

George Lawlor TD (Dáil Éireann, the Oireachtas)

Cathal Byrne Councillor (Wexford County Council)

Joe Neville Councillor (Kildare County Council)

Naoise Ó Muirí TD (Dáil Éireann, the Oireachtas)

Noel French Councillor (Meath County Council)

Aoibhinn Tormey Councillor (Fingal County Council)

Shane O'Callaghan Councillor (Cork City Council)

Sarah Reilly Councillor (Meath County Council)

Kenneth Noel O'Flynn Councillor (Cork City Council)

Robert O'Donoghue TD (Dáil Éireann, the Oireachtas)

Angela Feeney Councillor (Kildare County Council)

Joanna Byrne Councillor (Louth County council)

Aisling Dempsey TD (Dáil Éireann, the Oireachtas)

Edward Timmins TD (Dáil Éireann, the Oireachtas)

Tony McCormack TD (Dáil Éireann, the Oireachtas)

Vincent P Martin Senator (Seanad)

Erin McGreehan Senator (Seanad)

Emer Currie TD (Dáil Éireann, the Oireachtas)

Malcolm Byrne TD (Dáil Éireann, the Oireachtas)

David Fitzgerald Councillor (Kilkenny County Council)

Michael Doyle Councillor (Kilkenny County Council)

Donna McGettigan TD (Dáil Éireann, the Oireachtas)

Noel McCarthy TD (Dáil Éireann, the Oireachtas)

John Daniel Maher Councillor (Cork City Council)

John Paul O'Shea TD (Dáil Éireann, the Oireachtas)

Seamus McGrath TD (Dáil Éireann, the Oireachtas)

Úna McCarthy Councillor (Cork County Council)

Tim Lombard Senator (Seanad)

Nikki Bradley Senator (Seanad)

Pat the Cope Gallagher TD (Dáil Éireann, the Oireachtas)

Eoin Ó Broin Councillor (South Dublin County Council)

Tom Brabazon Councillor (Dublin City Council)

Conor Reddy Councillor (Dublin City Council)

Maeve O'Connell Councillor (Dun Laoghaire-Rathdown County Council)

Michael Fleming Councillor (Dun Laoghaire-Rathdown County Council)

Hazel De Nortuin Councillor (Dublin City Council)

Máire Devine TD (Dáil Éireann, the Oireachtas)

James Geoghegan TD (Dáil Éireann, the Oireachtas)

Niamh Whelan Councillor (South Dublin County Council)

Barry Ward Senator (Seanad)

Seán Kyne Senator (Seanad)

William Aird Councillor (Laois County Council)

John Clendennen Councillor (Offaly County Council)

Frankie Daly Councillor (Limerick City and County Council)

Kevin Boxer Moran TD (Dáil Éireann, the Oireachtas)

John McGahon Senator (Seanad)

Edel Mcsharry Councillor (Sligo County Council)

Phyll Bugler Councillor (Tipperary County Council)

John Cummins Senator (Seanad)

Jerry Buttimer Senator (Seanad)

Michael Murphy TD (Dáil Éireann, the Oireachtas)

Martin Daly TD (Dáil Éireann, the Oireachtas)

David Maxwell Councillor (Monaghan County Council)

TP O'Reilly Councillor (Cavan County Council)

Carmel Brady Councillor (Cavan County Council)