Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 20 Jan, 2025

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Sep, 2024 to 31 Dec, 2024

Specific Details Creating awareness to members of The House of the Oireachtas and Minister for Health of the need for the need for funding for those living with pulmonary fibrosis in Ireland, and the unmet needs of those patients and the challenges they face living with a life limiting condition, the cost of running oxygen at home and rising energy costs.

Intended results Secure government funding to support patients living with pulmonary fibrosis in Ireland

Name of person primarily responsible for lobbying on this activity Maureen O'Donnell, ILFA CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Email to Stephen Donnelly and John Lahart regarding public funding

Email (1)

Email to Stephen Donnelly and John Lahart regarding tax rebate

Email (1)

Email to Stephen Donnelly and John Lahart - following on the Section 39 refusal by the HSE

Phone call (2-5)

Phone calls to John Lahart regarding 2025 budget

Email (1)

Email to John Lahart re parliamentary question regarding 2025 budget

Email (1)

Email to Stephen Donnelly and John Lahart thanking them for their support and requesting a meeting with Stephen Donnelly in response to the parliamentary question

Letter (1)

Postage of ILFA Winter newsletter to Stephen Donnelly, John Lahart

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)

John Lahart TD (Dáil Éireann, the Oireachtas)