Down Syndrome Ireland

Lobbying Organisation Down Syndrome Ireland

Date published 19 Sep, 2025

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2025 to 31 Aug, 2025

Specific Details Support for people with Down syndrome experiencing regression

Intended results Attendance at DSI webinar on Regression, and follow up support for families.

Name of person primarily responsible for lobbying on this activity Gina Grant

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emailed Pearse Doherty with an invitation to DSI Regression webinar, which he accepted. There was then follow up emails on support for families.

Virtual Meeting (1)

Attendance of DSI Regression webinar, where Pearse engaged in conversation with DSI on what support is needed.

Email (2-5)

Email correspondence with Nessa Cosgrove regarding issues faced by those with Down syndrome who are experiencing regression.

Email (2-5)

Email correspondence with Peter Roche TD on regression and the support needed for those going through this.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pearse Doherty TD (Dáil Éireann, the Oireachtas)

Nessa Cosgrove Senator (Seanad)

Peter Roche TD (Dáil Éireann, the Oireachtas)