Rare Diseases Ireland
Mass communications
Lobbying activity
The following activities occurred for this specific Subject Matter Area.
Email (1)
Invitation to selected TDs & Senators to join a meeting discussing plans to request official rare disease event during EU Presidency.
Meeting (1)
1 hour meeting of Oireachtas All Party Group on Rare Diseases meeting to discuss importance and reasoning for highlighting rare diseases during EU Presidency
Letter (1)
Letter sent to Ministers for Health requesting official event highlighting rare diseases during EU Presidency - copied to Tánaiste, Minister for Foreign Affairs and Trade, Minister of State at the Department of the Taoiseach, Minister for Further and Higher Education, Research, Innovation and Science, Minister for Enterprise, Tourism and Employment
Designated public officials lobbied
The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.