Rare Diseases Ireland

Lobbying Organisation Rare Diseases Ireland

Date published 30 Apr, 2026

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan. 2026 to 30 Apr. 2026

Specific Details EU4Health Steering Committee proposal aiming to reinstate the Operating Grants for Health NGOs

Intended results Support from Ireland for proposal to reinstate the Operating Grants for Health NGOs at the EU

Name of person primarily responsible for lobbying on this activity Vicky McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Email sent to Minister in advance of EU4Health Steering Committee meeting of Feb 24th seeking support for reinstatement of EU operating grants.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Jennifer Carroll MacNeill Minister (Department of Health)