Huntington's Disease Association of Ireland

Lobbying Organisation Huntington's Disease Association of Ireland

Date published 13 May, 2026

Relevant Matter Public policy or programme

Public Policy Area Social Protection

Period 1 Jan. 2026 to 30 Apr. 2026

Specific Details To raise awareness of the socio-economic impact of Huntington's disease and highlight the need for a coordinated specialist multi-disciplinary service and dedicated integrated care pathway for families impacted by Huntington's disease.

Intended results Increase awareness of the need for an integrated care pathway for Huntington's disease to ensure earlier intervention and access to available social protection for families impacted

Name of person primarily responsible for lobbying on this activity Patricia Towey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

To highlight the social protection issues impacting families over generations and discuss the need for a dedicated care pathway to ensure access to available social protection supports for families affected by Huntington's disease

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Eoin Hayes TD (Dáil Éireann, the Oireachtas)