Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 01 Sep, 2026

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May. 2026 to 31 Aug. 2026

Specific Details Lobbying for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients including patient priorities, funding and transplants

Intended results Lobbying for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients including patient priorities, funding and transplants

Name of person primarily responsible for lobbying on this activity Maureen O'Donnell, ILFA CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

sent pre-budget submission to Minister for Health - McNeill Minister for Finance - Harris Catherine Callaghan John Lahart

Email (1)

asked to put in PQs re transplant to John Lahart

Email (1)

asked Edward Timmons to advocate on our behalf with Budget 2027 on the 20th August

Phone call (1)

asked Edward Timmons to advocate on our behalf with Budget 2027 on the 20th August

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

John Lahart TD (Dáil Éireann, the Oireachtas)

Catherine Callaghan TD (Dáil Éireann, the Oireachtas)

Simon Harris Tánaiste and Minister (Department of Finance)

Jennifer Carroll MacNeill Minister (Department of Health)

Edward Timmins TD (Dáil Éireann, the Oireachtas)