Alpha One Foundation

Lobbying Organisation Alpha One Foundation

Date published 03 May, 2018

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2018 to 30 Apr, 2018

Specific Details Emails to Simon Harris requesting a meeting to discuss the funding of Respreeza for 19 Alpha One patients, and to get an update from him on thge outcome of a meeting between the HSE and CSL Behring the Pharmaceutical company who developed and supplied the therapy.

Intended results Detailed update on outcome of the meeting detailed above and proposed plan for 19 ALPHA One patients. Commitment that the HSE would continue to fund the administration of the therapy supplied free of charge by the Pharma company

Name of person primarily responsible for lobbying on this activity Geraldine Kelly, CEO Alpha One Foundation

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

Michael Martin (Former DPO) TD (Dáil Éireann, the Oireachtas)

Alan Kelly (Currently employed as a DPO) TD (Dáil Éireann, the Oireachtas)

John Brassil (Currently employed as a DPO) TD (Dáil Éireann, the Oireachtas)

Michael Collins (Currently employed as a DPO) TD (Dáil Éireann, the Oireachtas)

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emaied the DPO's to request their support for a meeting with Minister for Health, Simon Harris

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Micheál Martin TD (Dáil Éireann, the Oireachtas)

Simon Harris Minister (Department of Health)

John Brassil TD (Dáil Éireann, the Oireachtas)

Alan Kelly TD (Dáil Éireann, the Oireachtas)

Michael Collins TD (Dáil Éireann, the Oireachtas)

John Curran TD (Dáil Éireann, the Oireachtas)

Billy Kelleher TD (Dáil Éireann, the Oireachtas)