Alpha One Foundation

Lobbying Organisation Alpha One Foundation

Date published 08 Jan, 2019

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2018 to 31 Dec, 2018

Specific Details Request support for HSE and Phama company supply and administration for Respreeza for 19 Alpha1 patients

Intended results Payment and administration approval for Respreeza for Alpha1 patients for the rest of their lives - permanent compassionate use programme

Name of person primarily responsible for lobbying on this activity Geraldine Kelly - CEO Alpha 1 Foundation

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

John Brassil (Former DPO) Minister (Carlow County Council)

Alan Kelly (Former DPO) Minister (Dáil Éireann, the Oireachtas)

Micheál Martin (Former DPO) Minister (Dáil Éireann, the Oireachtas)

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Phone call (1)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

John Brassil TD (Dáil Éireann, the Oireachtas)

Alan Kelly TD (Dáil Éireann, the Oireachtas)

Micheál Martin TD (Dáil Éireann, the Oireachtas)