DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 21 Jan, 2019

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2018 to 31 Dec, 2018

Specific Details Campaigning for a more comprehensive and sustainable nursing care system for the EB community.

Intended results A permanent contract for the EB Outreach nurse Ring fenced funding for care packages for patients with EB Create further awareness of the needs of patients and families living with EB

Name of person primarily responsible for lobbying on this activity Fiona Aherne

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

Maureen O Sullivan (Currently employed as a DPO) TD (Dáil Éireann, the Oireachtas)

Michael Healy Rae (Currently employed as a DPO) TD (Dáil Éireann, the Oireachtas)

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Mass communications

Email All Oireachtas Members Invite to attend report launch on the gaps in EB nursing service in Buswells on October 4th 2018

Email All Senators Invite to attend report launch on the gaps in EB nursing service in Buswells on October 4th 2018

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Phone call (11-20)

Invite to attend report launch on the gaps in EB nursing service in Buswells on October 4th 2018

Social Media (21-30)

Reminder invite attend report launch on the gaps in EB nursing service in Buswells on October 4th 2018

Meeting (6-10)

Seek advice regarding the report launch and follow up required.

Event / Reception (1)

Report launch "Identifying the Optimum Role and Function of an EB Outreach Nurse" in Buswells Hotel on October 3rd 2018.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Maureen O'Sullivan TD (Dáil Éireann, the Oireachtas)

Michael Healy-Rae TD (Dáil Éireann, the Oireachtas)

Katherine Zappone Minister (Department of Children and Youth Affairs)

Finian McGrath Minister of State (Department of Health)

Billy Kelleher TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly TD (Dáil Éireann, the Oireachtas)

Seán Sherlock Minister of State (Department of Foreign Affairs)

Kevin O'Keeffe TD (Dáil Éireann, the Oireachtas)

Eoin Ó Broin TD (Dáil Éireann, the Oireachtas)

Colm Burke Senator (Seanad)

Danny Healy-Rae TD (Dáil Éireann, the Oireachtas)

Michael Collins TD (Dáil Éireann, the Oireachtas)

Jim O'Callaghan TD (Dáil Éireann, the Oireachtas)

Ged Nash Super Junior Minister (Department of Jobs, Enterprise and Innovation)

John Brassil TD (Dáil Éireann, the Oireachtas)

Alice-Mary Higgins Senator (Seanad)

Frances Black Senator (Seanad)

Joan Collins TD (Dáil Éireann, the Oireachtas)

Margaret Murphy O'Mahony TD (Dáil Éireann, the Oireachtas)

Colm Brophy TD (Dáil Éireann, the Oireachtas)

Sean D. Barrett Senator (Seanad)

Caoimhghín Ó Caoláin TD (Dáil Éireann, the Oireachtas)

Rose Conway-Walsh Senator (Seanad)