Muscular Dystrophy Society of Ireland GLC (Muscular Dystrophy Ireland)

Lobbying Organisation Muscular Dystrophy Society of Ireland GLC

Date published 09 Sep, 2021

Relevant Matter Matters involving public funds

Public Policy Area Budgetary matters

Period 1 May, 2021 to 31 Aug, 2021

Specific Details Sent Muscular Dystrophy Ireland's Pre-Budget 2022 Submission to key government ministers and leaders of opposition. Key asks include: increase funding for Personal Assistance; increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports for disabled people; invest in neurology services; update and implement National Rare Disease Plan.

Intended results The incorporation of a range of measures within Budget 2022, including: increase funding for Personal Assistance; increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports for disabled people; invest in neurology services; update and implement National Rare Disease Plan.

Name of person primarily responsible for lobbying on this activity Elaine Mc Donnell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Submission (1)

MDI Pre-Budget 2022 Submission sent by email with accompanying letter to key ministers, relevant Oireachtas Committees and members of opposition. (Please note that MDI carried out a grass roots Pre-Budget 2022 Campaign within the next reporting period, September - December 2021.)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)

Micheál Martin An Taoiseach (Department of the Taoiseach)

Leo Varadkar An Tánaiste (Dáil Éireann, the Oireachtas)

Simon Harris Minister (Department of Further and Higher Education, Innovation and Science)

Paschal Donohoe Minister (Department of Finance)

Michael McGrath Minister (Department of Public Expenditure and Reform)

Heather Humphreys Minister (Department of Social Protection)

Roderic O'Gorman Minister (Department of Children, Equality, Disability, Integration and Youth)

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

Norma Foley Minister (Department of Education)

Darragh O'Brien Minister (Department of Housing, Local Government and Heritage)

Josepha Madigan Minister of State (Department of Education)

Niall Collins Minister of State (Department of Further and Higher Education, Innovation and Science)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Catherine Murphy TD (Dáil Éireann, the Oireachtas)

Gino Kenny TD (Dáil Éireann, the Oireachtas)

Mary Lou McDonald TD (Dáil Éireann, the Oireachtas)

Alan Kelly TD (Dáil Éireann, the Oireachtas)