Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 14 Sep, 2021

Relevant Matter Public policy or programme

Public Policy Area Education and Training

Period 1 May, 2021 to 31 Aug, 2021

Specific Details Lobbying for a clinical care programme for pulmonary fibrosis patients

Intended results To get a clinical care programme set up for our patients and members

Name of person primarily responsible for lobbying on this activity Nicola Cassidy

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Ministers received an invitation to attend ILFA World Cafe Workshop as ILFA is campaigning for a dedicated Clinical Care Programme for Pulmonary Fibrosis from the HSE so that a defined care pathway (model of care) will be introduced to improve the diagnosis and delivery of care for pulmonary fibrosis patients.

Email (2-5)

ILFA received an offer of help with a Pre budget submission

Informal communication (2-5)

ILFA newsletters were circulated to some Ministers by post

Informal communication (1)

An ILFA member spoke to a local TD regarding the need for a clinical care programme for patients living with pulmonary fibrosis

Informal communication (1)

Another ILFA member communicated to contact an Oireachtas member re ILFA lobbying for a clinical care pathway for pulmonary fibrosis patients

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Colm Burke Senator (Seanad)

Peadar Tóibín TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly TD (Dáil Éireann, the Oireachtas)

Paschal Donohoe Minister (Department of Finance)