Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 18 Jan, 2023

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2022 to 31 Dec, 2022

Specific Details Irish Lung Fibrosis Association (ILFA) canvassing some members of the Oireachtas to create awareness of lung fibrosis in Ireland

Intended results Awareness Awareness Awareness around the need for a clinical care programme for those living with lung fibrosis in Ireland

Name of person primarily responsible for lobbying on this activity Nicola Cassidy

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (2-5)

Irish Lung Fibrosis Association (ILFA) Autumn/Winter newsletters circulated to create awareness of lung fibrosis in Ireland and of ILFA

Email (2-5)

Members of the Oireachtas were contacted to request assistance to acquire an invitation to present ILFA in the AV Room at Leinster House

Event / Reception (1)

Ahead of #WorldLungDay, Nicola and Eddie Cassidy (ILFA Chairman) attended an event organised by the Irish Thoracic Society (ITS) in association with the Irish Lung Health Alliance to highlight the challenges facing lung fibrosis & other respiratory patients.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Mark Daly Senator (Seanad)

Barry Cowen TD (Dáil Éireann, the Oireachtas)

Carol Nolan TD (Dáil Éireann, the Oireachtas)

Ruairí Ó Murchú TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly TD (Dáil Éireann, the Oireachtas)

Danny Healy-Rae TD (Dáil Éireann, the Oireachtas)

Martin Browne TD (Dáil Éireann, the Oireachtas)