DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 26 Aug, 2024

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 May, 2024 to 31 Aug, 2024

Specific Details Dissemination of a pre-budget submission to key members of the Dail, including the Minister for Health, the Joint Health Committee, and party spokespeople on health and disability.

Intended results To raise awareness of challenges faced by people with EB when accessing services and supports in acute and community settings, and to ask for consideration for ringfenced funding for these services in budget 2025.

Name of person primarily responsible for lobbying on this activity Sinead Hickey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (11-20)

Dissemination of a prebudget submission covering topics such as access to nursing care, psychological support, care coordination, and access to medicines in order to highlight gaps and challenges in provision and request funding to be allocated to the delivery of improved supports.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Seán Crowe TD (Dáil Éireann, the Oireachtas)

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

Colm Brophy TD (Dáil Éireann, the Oireachtas)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Neasa Hourigan TD (Dáil Éireann, the Oireachtas)

Gino Kenny TD (Dáil Éireann, the Oireachtas)

John Lahart TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Lorraine Clifford-Lee Senator (Seanad)

Martin Conway Senator (Seanad)

Annie Hoey Senator (Seanad)

Seán Kyne Senator (Seanad)

Frances Black Senator (Seanad)

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

Jack Chambers Minister (Department of Finance)

Colm Burke Minister of State (Department of Health)

Stephen Donnelly Minister (Department of Health)

Paschal Donohoe Minister (Department of Public Expenditure, NDP Delivery and Reform)

Hildegarde Naughton Minister of State (Department of Health)

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

Duncan Smith TD (Dáil Éireann, the Oireachtas)

Pauline Tully TD (Dáil Éireann, the Oireachtas)