DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 09 Dec, 2024

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Sep, 2024 to 31 Dec, 2024

Specific Details To inform the relevant parties we lobbied earlier in the year of the outcome of Prebudget Submission following a meeting with Minister Stephen Donnelly, who has agreed to support the submission.

Intended results Debra wished to thank the parties for their support in 2024 that led to the government support of the 2025 Pre Budget Submission for people living with EB in Ireland and implementation of a plan to fund the initiatives through the HSE from 2025. DEBRA intended to keep parties updated and secure continued support to ensure the initiatives from Debra's 2025 PreBudget Submission are implemented.

Name of person primarily responsible for lobbying on this activity Aoife Murdock

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (11-20)

Thanked TDs for their support for PBS and informed them of the outcome.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

John Lahart TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Lorraine Clifford-Lee Senator (Seanad)

Martin Conway Senator (Seanad)

Annie Hoey Senator (Seanad)

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

Colm Burke Minister of State (Department of Health)

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

Duncan Smith TD (Dáil Éireann, the Oireachtas)

Pauline Tully TD (Dáil Éireann, the Oireachtas)

Seán Kyne Senator (Seanad)